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  • Survey among people with MNGIE

  • Aim of the survey

  • Dear Friend,

    we would like to thank you for joining this survey.

    Your participation is very important for phisicians and researchers in order to achieve the goals of this project, such as understanding the dimensions influenced by the disease and their impact in your daily life. We therefore invite you to answer the questions listed below.

    Please, remember to answer ALL the questions selecting the answer that best describes your point of view. We also remind you that there are NO RIGHT or WRONG answers, only answers that describe you better.

    Thank you for your time in filling in this survey, which takes about 10 minutes. Please, note that the questionnaire is ANONYMOUS and all answers you provide will NOT be analysed individually, but only collectively.

    All the data provided will be collected by Mitocon ODV, the italian no-profit organization who represents people with mitochondrial diseases. Data collected are confidential and protected by the italian current legislation and the European General Data Protection Regulation (GDRPR) 679/2016 for the purposes indicated in the following page. For more information visit https://www.mitocon.it/privacy-policy/ or write to scientific.office@mitocon.it

    Thank you for your participation

  • Socio-demographic aspects

  • On a scale of 0 (not at all) to 10 (extremely), we kindly ask you to indicate to WHAT EXTENT THE DISEASE IMPACTS each of the following domains:

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  • On a scale of 0 (not at all) to 10 (extremely), we kindly ask you to indicate to WHAT EXTENT THE DISEASE IMPACTS each of the following domains:

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  • On a scale of 0 (not at all) to 10 (extremely), we kindly ask you to indicate the IMPORTANCE, IN YOUR DAILY LIFE, of the following domains:

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  • On a scale of 0 (not at all) to 10 (extremely), we kindly ask you to indicate the IMPORTANCE, IN YOUR DAILY LIFE, of the following domains:

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  • On a scale of 0 (not at all) to 10 (extremely), we kindly ask you to indicate the IMPORTANCE, IN YOUR DAILY LIFE, of the following domains:

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  • On a scale of 1 (not at all) to 5 (very much) we kindly ask you to indicate how easy/clear/boring/useful you found the questionnaire:

  • Should be Empty: